LEGISLATION AND ETHICS
This WG will govern and assist in the drawing up of Material Transfer Agreements (MTAs) to create sample biobank established in the objectives of other WGs. This WG will also manage and coordinate the approvals of local institutional ethics committees, and the obtaining of informed consent from patients for the use of data and samples.
Tasks & Activities
- To organize and coordinate MTAs and transfer of samples among countries.
- To supervise data storage and data sharing and administration of the registry databases.
- To deal with legal and ethical issues.